I hope to someday block today out of my mind. We spent six hours waiting at Children's today.
Let me back up and tell you why. Today at 2:50 we were suppose to be meeting with a doctor about her MRI results and to discuss her hearing issues and if she was needing implants yet or not. No big deal right? Wrong! In true Emma form, she made things complicated and we spend a loooonnnnggg time waiting in ped surgery clinic to be told she need to go to the OR for a cleaning out of her tummy. (I will not share all the gory details about how we knew she needed cleaned out) Duh we knew that, but did we really need to wait four and half hours to be told that. Poor Emma was up last night throwing up due to her belly issues and then had to wait all day long, she luckily was a trooper and slept some and sat pretty calmly while we waited. However, mommy and daddy got pretty cranky:)
So tomorrow we head to the hospital to be put to sleep and cleaned out. Hopefully we are in and out by mid day. Just worried since she has a cold and that can cause issues when she is put to sleep.
We did get good news this week, that she is doing so well with her hearing aids, we do not meet the qualifications for cochlear implants right now!! Yippee! They are thrilled about her hearing levels and her increase in speech in such a short time. We will go every three months to keep a close eye on that and make sure she stays on track. The new dr looked closely in her ears and saw that she has a hole in her right ear drum and the tube is trying to come out as well. Then when he learned they are three years old, he decided they need out soon. He hopes to go in while she is in the OR tomorrow and do the tube removal. But he is not sure if he can squeeze her in. I pray he can, since we hate to keep doing sedations. So here is hoping for good timing.
All in all a roller coaster of a week and cant wait for it to end. Emma is a trooper, but hate to keep doing this over and over again. PRaying after this trip we can finally get them to let us see A GI doctor and get some better plans together to stop this from happening. Her classmates are making her cards though which is so sweet and her new teacher is so worried. Makes me feel good that she is already loved at her new school. We hope she will be back at school by Friday, she has missed all week so far (BOO)
There you have it our crazy week!